“I can give them a new liver, but you can tell them how to live their lives”
Joe Tector PhD MD, Head of Transplantation
Indiana University Health University Hospital
Indiana University School of Medicine
Welcome to Survive-Then-Thrive Liver Transplant Survivors Community:
The information comes from published research and from the many patients who, through my research, I have come to know over time. My goal is always to translate this data into educational material to help others plan and learn what to expect before liver transplantation, while waiting for a liver transplant, and during the post-liver transplant recovery phase. The goal of liver transplantation is always to return people to the ability of living their lives in a healthy productive way.
As liver patients and liver transplant recipients it is our responsibility
to take the best care of ourselves that we can.
There is a tremendous amount of material on the web about the transplant experience and post-transplant recovery. Much of it is inaccurate because it is based on impressions, not on carefully collected patient experiences. All the material on this site comes from, published research evidence and actual patient experiences. It is organized in 7 Stages people usually experience during the liver transplant process (Scott 2011).
The process of experiencing liver failure is both all too common and too little understood. An important feature of this project is to provide information and support to people who are themselves experiencing liver disease and are at any stage of the transplant process, as well as to their families and friends.
This site will allow you to:
- Live your life while waiting for a liver transplant by staying as involved as possible in primary productive roles;
- Support your care giver and important supportive others in your life
- Learn what others have experienced, share, and compare your situation to others who are having similar experiences;
- Learn some strategies, that helped me cope from my training as an occupational therapist;
- Take active control of a seemingly out of control situation;
- Return post-transplant to those roles such that you can achieve full participation in daily life.
Important information for patients:
This website is designed to complement [not replace] your pre- and post-transplant education and the guidance you receive from your medical professionals
In this site some areas are open and some require you to join (no charge to join ever!) Essentially you can:
- Access factual information about the liver transplant experience
- Learn about the founder; Patty Scott
- Contribute Data about your own experience
- Read about the experiences of others
- Transplant Candidates, patients and Recipients -Participate in an on-line support group
- Caregivers – Participate on an on-line support group
- Contribute to ongoing patient research
- Make a donation to support the continuation of this site
Scott, P (2011) Occupational Therapy Services to enable liver transplant patients to thrive following transplantation. Occupational Therapy in Health Care 25 (4) 240-256by